Tuesday, October 21, 2014

Post botox

So the mixed bag that is Botox I spoke of in the last post, include the impact on smaller muscles.  I will never do Botox on my sons hand again!  He lost so much of his fine motor skills I cried a few times I the months proceeding the procedure.   He went from having a nice pincer grasp and the ability when instructed to pick up small items like m&ms with 2 fingers.  Amazing, if you knee how much therapy and everything else that went I to working on this for 2.5 years.  Well one week post op no pincer. E Botox was supposed to help his thumb and stop ringman and tallman from tucking in.  Well instead it affected pointer.

Pointer was not able to stay straight and was itself tucking in.  So we went to using an overnight brace to stretch him fingers in an open position.  We saw an OT both through EI and our insurance once a week each to help regain this skill and the ability to have control over this very important finger.  We worked on weight bearing,  doing wheelbarrows around the house. Leaning. Over peanut balls and supporting his weight si righty as he colored or did puzzles with lefty, etc...

Pincer is still not here bit I have great hopes for his second round of Constraint therapy that starts next week.  Connor does have great skills and use of his right hand and arm and has been building muscle by climbing and doing a lot of obstacle course and PT.  Which the two amazing PT's that have come into our lives in the last few months have made a world of difference for him.  That will be another post.

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